giveaway

July Giveaway #4: CJ Hats Gift Certificate

cant-bcribbon-side

Mary Ann Weiss of CJ Hats has donated a $20 gift certificate to her store.  Mary Ann is an 18 year survivor of Stage IIIB Inflammatory Breast Cancer.   She began selling her hats for men, women, and children on Etsy and eBay a few years after beating the disease.  All of the hats are handmade in Michigan, USA.

Visit CJ Hats’ website HERE.
CJ Hats can also be found on Facebook, Pinterest, and Instagram.

***CLICK HERE TO ENTER THE GIVEAWAY***

)

giveaway

Giveway #18: Zipport Shirt

ladies_pink_full_grande

Laura Buckman of Zipport Wear has donated a women’s pink or black Zipport Shirt.  Soft cotton blend t-shirt with the black plastic zipper on the specified side.

For every shirt purchased, one is donated to a child in need.

Visit the Zipport Website at www.zipportwear.com.

Like Zipport on Facebook HERE.  Follow on Twitter HERE.

***ENTER TO WIN THE GIVEAWAY HERE***

Will was diagnosed with Leukemia in 2015.  He hated having to take his shirt off for port access every time we went to the doctor.  I knew there had to be a better way.  A few weeks later, the Zipport shirt was born and it was a game changer in our journey.  Since then, we have sold hundreds of shirts like this to kids and adults who need them.  In the early stages of Zipport, I knew that I wanted it to be something that would help people.  Zipport is now a one-for-one company.  When you purchase a shirt from the website, you are also donating a shirt to a child in need, you are paying it forward and helping solve this problem for another family.

guest blogger, Side Effects

It’s Just Hair

By Taylor Eames

Facebook memories are a wonderful thing, aren’t they?  A few days ago, it reminded me that I lost my hair a year ago.  I reread what I had written that day, and tears came to my eyes as I remembered the emotional impact this moment in my life had on me.  Let me share what I wrote on April 8, 2016:

FB_IMG_1491923778829

“Last night, kind of suddenly, my hair started coming out in fist fulls.  I went from having a firm grip on my hair to it coming out so easily almost within minutes. It hit me hard. The thought of waking up and finding clumps of hair on my pillow gave me an anxiety attack. So we did what most do during this phase in chemo and shaved it off. It was a very heartbreaking moment in this journey. I never expected it to affect me that greatly. Yes, it’s only hair and it will grow back. But I feel a huge part of my femininity was taken from me. Also, everyone’s looks change drastically when their hair changes. I wept as my mom took the clippers to my head. Actually we all did. My mom cutting my hair, my sister on skype [in San Francisco], Annie [my daughter] (who’s in Michigan visiting her dad) also on video chat. We all just cried. We had joked about the shaving of the head being a fun occasion, but it wasn’t. It was like mourning a loss. Yes it’s only hair, yes it will grow back. But it still hurt me to the core. It will take some getting used to. Eventually it will be the new normal. Maybe later, after I get up for the day, shower, put some makeup on, and don a cute hat, I’ll shar
e a picture. But I have to allow myself to feel the full gamut of emotions or I’ll implode.”

FB_IMG_1491923772671

I remember after the shave, I went to my room and cried some more.  Then I didn’t want anyone to see me for a while.  I hid in my room as my family continued their lives.  Finally, the next day I was forced to emerge from my solitary sanctuary and rejoin society.  This time as a bald cancer warrior.  Now I wore my badge, now everyone knew I was fighting cancer, I was getting chemo.  Now people looked at me differently.  Some with pity, some with admiration, and some with wonder.  Some stared, some purposely would not make eye contact.  And then there were the ones who boldly asked where I was in treatment and how I was taking it.  I didn’t know how to react to that.  Was it rude of them to ask or was it nice of them to make conversation with me and treat me like a normal person?  I guess I didn’t have anything to hide, so I was glad to talk to people instead of getting strange looks.

Later on in treatment, I was at a waterpark with my family.  I wore a cute floppy bucket hat for the most part because chemo makes you more susceptible to the sun, and my bald head was sensitive.  But we live in Arizona and this was the end of July where temps average 115 from day to day.  At one point, I was laying in a wading pool watching my kids play, and I decided to take my hat off because it was making me sweat.  (Don’t worry, I was slathered in sunscreen!)  It only took a few seconds for kids to start looking at me strange. Eventually, one little girl splashed up to me and said, “Why your hair like that?”  My daughter protectively said that I have an illness and the medicine makes my hair fall out.  She looked at me with concern and said, “You ok?”  I smiled and said, “Yes! Thank you!”  That satisfied her curiosity.  She smiled back and she happily splish splashed away.

I lost my hair in April, and it barely started growing back in September.  I kept my head covered in public with hats or bandanas until December.  Like I said, I didn’t think not having hair was going to affect me so much, but it does change everything about the way you look and the way people look at you.  I wasn’t comfortable braving the bare look outside of the home, but others are.  Some do just fine with the shaving of the head, some even celebrate it.  And some mourn the loss, like I did.

Whatever the reaction to losing your hair, it’s yours.  No one can understand what you are going through unless they have experienced it themselves.  Yes, it will eventually grow back, but the fact is your look is changed for at least 2 years.  It’s not just hair.  Regardless of how you handle it, just remember you are braver than you know.


photogrid_1489558558749.jpg

Taylor Eames is a single mom of four living in Yuma, Arizona, who was diagnosed with triple negative invasive ductal carcinoma in January of 2016.  She openly chronicled her experience during treatment and continuing through the aftermath on TaylorTough on Facebook.  Taylor is one of the founders of Breast Cancer Sisters along with her dear friend, Kristy Irizarry.

giveaway

Giveaway #15: $45 Gift Certificate to Dress With Ease

Dress With Ease has donated THREE $45 Gift Certificates to their store.  Adaptive clothing from Dress With Ease will be helpful for anyone who has recently had a mastectomy, lumpectomy, or sentinel node removal, or even reconstructive surgeries that make raising the arms difficult.

Visit the Dress With Ease Etsy shop here: www.etsy.com/shop/dresswithease

***ENTER TO WIN HERE***

Our goal for DressWithEase is already in the name, to provide you or anyone you love with clothing that can be worn, well, easily. We want to be able to provide you with Adaptive Clothing that suits your needs, while also introducing different colors, patterns, and designs to keep things interesting. Please be sure to pop in our store every once in a while to check out what’s new! And if you have any ideas in mind for some Adaptive Clothing options we could possibly make for you that you feel would help you and many others like you make sure to let us know. Help us, help you.

Our Adaptive Clothing line is made special for ANYONE who struggles with anything from simply putting on a T-shirt to slipping on a dress. We have been making these clothes for two decades, and we have had the pleasure of aiding people who have either: had surgery, suffered from strokes, become bedridden, suffered from an injury, or just found putting on regular clothes by themselves to be too daunting of a task.

collaborative post, Side Effects

Like Swimming through Honey

This post is a collaborative effort from the members of Breast Cancer Sisters compiled by Taylor Eames.

wp-1489765583126.jpg
Submitted by Jane B.

 

Is “Chemo Brain” real?

If you ask the Mayo Clinic, they say, “Though chemo brain is a widely used term, it’s misleading.  It’s unlikely that chemotherapy is the sole cause of concentration and memory problems in cancer survivors.¹”  In fact, they mention many other conditions related to cancer and its treatment, such as stress, anxiety, fatigue, infection, insomnia, and even brain cancer, to try to explain the phenomenon.

But upon posing this question to our support group, Breast Cancer Sisters, the answer was an emphatic YES!  Thankfully, the Mayo Clinic is hearing the outcry from the foggy minds of cancer survivors.  They are acknowledging that “it’s clear that the memory problems commonly called chemo brain can be a frustrating and debilitating side effect of cancer and its treatment.¹”  Researchers are doing more studies on the subject.

Chemo Brain is characterized by our group members as a fog.  Cori K. was describing her experience with multiple sclerosis in one post saying her brain function at times was like “swimming through honey.”  I immediately thought that was a perfect way to explain exactly how my thought process has been since I went through chemo last summer.  About halfway through my treatment plan, I was trying to introduce someone to my daughter, and for the life of me, I could not remember the other person’s name.  It was incredibly embarrassing, and I felt like I made my friend of a few years feel as though she were not special to me because I could not recall her name.  Shortly after that, I was trying to remember our zip code and numbers floated around in my brain with no rhyme or reason.  I could see the numbers, I could reach for them, I know they were there, but I just could not get to them. The same often happens with our regular vocabulary. Fellow breast cancer warrior, Linda L. says, “I describe it like my brain is in a blender, and the words are swirling around.  I know what one I want, I just can’t grab it.”  I brought up the concern to my oncologist.  He acknowledged that I was having memory issues but refused to admit that it was caused by chemotherapy.

As I said above, our members believe otherwise as they hadn’t suffered from these problems prior to treatment.  Many of our members report forgetting names of family and friends and numbers they’ve known for long periods of time, stopping mid-sentence unable to remember what they were speaking about, or not being able to reach words in their muddied brain.  Below are some of the funnier moments our members have mentioned.

“During chemo [I] was on my way to work (bald) and thought I might have left the curling iron on.  And a few months back I did this (picture below)”–Kelly N.

wp-1489765575149.jpg

“I was just on the phone with my doctor and they asked for my last four digits of my social security number…can’t remember it at all!”–Jane B.

“[This is] one of my greatest frustrations as I always had a photographic memory.  I work as an assistant principal and my campus supervisor always tells me, ‘You had a super power.  Now you are a human like the rest of us.'”–Christine A.

“[I] was asked for my address and had to look at my driver’s license!!”–Sue H.

“I almost made kitty treat tea instead of real tea and it took me hours to figure out we were out of tea!”–Lynn R.  (picture below)

wp-1489768462458.jpg

“I forgot the chili powder for the homemade chili I am making.”–Jennifer G.

“I totally had chemo brain this morning.  I was walking out the door to run some errands and forgot to put on my shoes.  Good thing I didn’t get far, my feet got cold!”–Amy C.

“I literally called the PA at my oncologists office to ask a question, totally expecting to leave a message and she picked up.  And the question jumped right out of my head.  I had to hand up and call her later that day.”–Kristy I.

“When I was having my chemo treatments, I ended up forgetting, of all things, my husband’s birthday.”–Anna R.

“I left an $80 tip to a server last week and the bill was $220.  I’m sure she was happy, not sure how it’s going to look on my expense report.”–LaChelle M.

Now that we have established it is real even though the Mayo Clinic doesn’t believe it, here are some suggestions from our members on how to combat the foggy brain.

  1. Make lists.  Use your phone or a small notepad to create a to-do list for yourself and carry it with you everywhere.  Check off things you have done and add things you need to do any time you think of them.
  2. Set reminders on your phone.  I personally have 4 reminders on my phone daily just for my medications.
  3. Play memory games, read books, play Words with Friends, etc.  Anything you can do to work your mind can help restore your brain function.
  4. Keep a GPS in your car or use your phone.  Many of our members have mentioned getting lost when driving or walking.  If you keep your phone with you, you’ll be able to use it to find your way back to where you came from.
  5. Ask friends, family, and co-workers to be patient with you.  You can even ask them to help you out when you get stuck.  Explain why in advance so they understand.  Ask for vocabulary help or to remind you of people’s names.
  6. Sticky notes can be your best friend!
  7. Proofread twice!  Check over messages to make sure you didn’t misuse or misspell any words.
  8. Repeat information out loud.  I often say people’s names over and over again when I meet them so I don’t lose the name.  Sometimes saying something out loud, in your head, and even writing it down all at the same time will help yor remember something.
  9. Minimize distractions.  The more you can concentrate, the easier it is to remember things.  If you are used to being able to multitask, it may prove to be more difficult now.  Go easy on yourself if you aren’t able to do it any longer.
  10. Get plenty of sleep and rest.  A rested brain is a happy brain.
  11. Talk to your oncology social worker or a therapist.  This can be embarrassing and you need to work on accepting it.  Talking to a professional can head off any anxiety or depression you may develop.
  12. Stay organized.  Use calendars or planners.  Clutter can make your brain confused.
  13. Take breaks.  This is hard on you, and it’s exhausting to concentrate so hard.  Give your mind a rest now and again.

Lastly, remember you are not alone.  When I posted this topic in our group, it received over 100 comments in 6 hours time.  It was cathartic to relate and laugh at each others’ comedic stories of memory loss.  Join our group and laugh with us too.

….now, what was it I was talking about?

¹ Mayo Clinic Staff Print. “Overview.” Mayo Clinic. Mayo Foundation for Medical Education and Research, 15 Jan. 2016. Web. 17 Mar. 2017.


photogrid_1489558558749.jpg

Taylor Eames is a single mom of four living in Yuma, Arizona, who was diagnosed with triple negative invasive ductal carcinoma in January of 2016.  She openly chronicled her experience during treatment and continuing through the aftermath on TaylorTough on Facebook.  Taylor is one of the founders of Breast Cancer Sisters along with her dear friend, Kristy Irizarry.